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Tuesday, July 30, 2024

Amazing Event for TS Butterflies!!

  Hello Friends!


I just have to share about the amazing "Fairbanks Strikeout for Turner Syndrome" event at the Tampa Bay Rays Tropicana Field Ballpark in St. Petersburg!!



On Sunday, July 28th it was the Disability Pride & Awareness Game for the Tampa Bay Rays and the Turner Syndrome Foundation was there to watch this awesome game!



Pete and Lydia made sure we were all warmly welcomed with hugs for all from Lydia and handshakes from Pete and we even got to meet their two beautiful children, Issaic,  a four year old son and Lottie a two year old daughter.  Such a wonderful and loving family!   They lost their third child to complications from Turner Syndrome at 19 weeks gestation and they decided to take their pain and turn it into something beautiful for all of the Turner Syndrome girls and women out there.  They are not only bringing awareness of TS to the world, but also fundraising for the Turner Syndrome Foundation so that it can continue to educate families, the medical field and the educational field of the many ways that TS can affect individuals with TS throughout their lifetimes!



The Fairbanks treated us to a Luxury Suite in the Stadium with food, drinks and a bird's eye view of the playing field!  We couldn't have asked for a better day!  It was an exciting game with Pete winning the game with the final strike out!





I, for one,  feel so blessed to have had a small part in all of this!  It was an absolutely wonderful event and game and I cannot thank the Fairbanks Family enough for their generosity!


Thanks for stopping by!

Lori

Friday, April 12, 2024

Take a Step for TS

Hello Friends!


Why not join me and a couple of other Board Members of the Turner Syndrome Foundation and Take a Step with the Turner Syndrome Foundation!


You are Invited!

Gear up for an impromptu casual walk, a delightful event that strengthens our community and boosts awareness. It's time to rally your friends and neighbors to join us for this walk.

Where's the fun happening? At the lovely Holmdel Park, Long Street, Holmdel, NJ 07733

When's the big day?  April 14, 2024, from Noon to 2PM

Extra goodies for you:


Do you need help or want to spread the word about your event? Don't hesitate to contact us on social media or simply drop us a line. We're all ears! Your participation benefits the Turner Syndrome Foundation, a non-profit organization committed to enhancing the lives of Turner syndrome girls and women. We appreciate your support immensely! 

Raising Awareness & Growing Our Community

Come out and enjoy a walk in the park

  • Show that you care.
  • Meet new people.
  • Spend time outdoors surrounded by nature.

A simple walk and time together... We hope to see you there!

Take a Step for TS
 

Hope to see you at Holmdel Part on Sunday, April 14th!!

Lori

 

Wednesday, January 31, 2024

Turner Syndrome Awareness Card Auction

 

Hello Fellow Crafters,



Today I am sharing about the Turner Syndrome Awareness Card Auction! 



For the last several years, I’ve been running the Turner Syndrome (TS) Awareness Card Auction as a fundraiser for TSF. As part of the Card Making Community, I know Card Designers from all over the world who donate their handmade cards for the Auction. These cards are made with love to help support TSF and our mission to improve the lives of TS females!  


Cards are Special


Today we live in a "throw-away" society where it’s more convenient to send a text or email rather than sitting down and writing out a card; but is it the same thing? 


When you receive a text wishing you “Happy Birthday,” do you get the same warm fuzzy feeling when opening a card with a handwritten note inside? Once you read the text, its moment has ended. But a handwritten card is special


Imagine going to your mailbox and finding an envelope with a loved one's handwriting on it. You immediately recognize the writing and a smile comes across your face. When you read what they wrote inside, it’s like getting a big warm hug from them! It means the person who sent it to you took the time to pick out a card, write something in it, and address the envelope.



Why Buy From the TSF Card Auction?


You might be wondering, why should I buy a card from the TS Awareness Card Auction rather than a Big Box store? 


There is no comparison between a beautiful handmade card to a mass produced card. Every piece of the handmade card is an artist sharing their unique craft compared to a machine printing out cards by the hundreds.


Card Designers are taking time out of their day, using their costly supplies, and making cards filled with love for the benefit of TSF!! Whether it’s a stamped image that they lovingly colored, or cutting out and piecing together various elements harmoniously, time and effort go into each part of the card. Handmade cards are precious as "one-of-a-kinds," which makes them interesting and unique!


It’s about imagination, crafting skills, and love. Why put money into the pockets of corporate companies when buying a card from the auction keeps TSF alive and supports individuals with TS? 


In our fast-paced computerized world, we have lost touch of this beautiful sentimental art. So let's revive the lost art of sending cards to our family and friends. Let them know you love and appreciate them!


Please consider buying a card or two from the auction to show your support for TSF and our generous Card Designers who donate their handmade crafts! With Valentine’s Day right around the corner, this year can be a little more special and unique just like your loved ones. Or prepare for your favorite holiday in the future! Each card is a work of art, an act of love, and another step forward in supporting women with Turner syndrome.


Here is a link to the TS Awareness Card Auction:  https://givebutter.com/c/TSAM24CA


Thanks so much for stopping by!
Lori