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TSF Endorsement Article

October 2019

It’s A Girl Thing Blog Hop: Earn Prizes, Do Good

You’re invited to the second annual Turner Syndrome Awareness Month Blog Hop hosted by Lori Kobular! Lori is a Board Member and longtime supporter of the Turner Syndrome Foundation, a nonprofit organization that strives to increase awareness and education of Turner Syndrome (TS).

How Does It Work?
Card Designers from many scrapbooking and card-making online stores each create a special card based on a mood board designed by Lori’s friend and design teammate, Donna Ellis. The mood board features butterflies, a symbol of TS women and girls, and the Turner Syndrome Foundation’s classic green. More than 35 volunteers are on board to create a card and share about the design on their blog. This year’s designers include Cathy Zielske, a graphic designer, YouTuber, art director, and columnist well known for her designs for Simon Says Stamp, an online scrapbooking and card-making store. Individuals are then invited to visit the blog posts, read about the designs, and leave a comment. Commenters are eligible to receive prizes from a list of more than 30 stamp and die companies!

Three lucky winners will receive access to one of Jennifer McGuire Ink’s Online Card Classes, technique and design videos for beginner and veteran card makers alike! Jennifer is a crafting instructor with more than 13 years of experience, reaching thousands of crafters worldwide through her popular blog.

Participating sponsors also include SheepSki Designs, Bugaboo Stamps, Scrappers Delight, The Artsy Stamper, Unity Stamps, My Favorite Things, Dies R Us, Newton's Nook, Whimsy Stamps, Sugar Pea Designs, Tailored, Expressions, Imagine Crafts, Frantic Stamper, Neat & Tangled, Stamplorations, and more! A full list of sponsors and prizes can be found at https://myturnersyndromejourney.blogspot.com/p/blog-hop-sponsors-2020.html.

The Blog Hop runs from February 1st through February 7th. Prize winners will be announced on the main blog on February 15th.  

Why a February Blog Hop?
Lori hosts the Blog Hop annually in February because it is Turner Syndrome Awareness Month. Turner Syndrome is a leading genetic disorder affecting 1 in 2,000 women and girls. Lori’s daughter, Julie, has TS, so she knows firsthand the importance of raising awareness. Lori shares, “I am hoping that by raising TS awareness, the medical field will do more much needed research into how TS affects girls and women throughout their lifetime. ”  

Julie was diagnosed with Turner Syndrome at six weeks old. TS is a lifelong condition that requires specialized care at every life stage. Unfortunately, many are not diagnosed until 15 years old or later. Lori and Julie’s story shows how a greater awareness can support all women and girls with TS.

Julie was born with an abnormally formed palate, an indication linked with TS, which led to aspiration (liquid entering the lungs). She was given a feeding tube and stayed in the NICU for a week after Lori left the hospital, a difficult time for a first time mom. When Julie’s feedings did not improve, Lori took her to a hospital with experience caring for girls with TS. There, Lori was given a special bottle that helped with feeding issues. Had more doctors been aware of the indications of Turner Syndrome, Julie’s first weeks could have gone very differently.

The Blog Hop connects card designers, scrapbookers, crafters, and more over a common cause: Turner Syndrome awareness. “Most of the comments that I received from the Blog Hop last year stated that they had never heard of TS. They were very happy to learn about it,” notes Lori.

How Can You Help Raise Awareness?
Join in on the Blog Hop online party! Visit https://myturnersyndromejourney.blogspot.com to learn more about TS, read Lori’s story, and find links to all participating card designers. Start commenting and earn great prizes!

All of the cards Lori is creating for the Blog Hop will be for sale on her Card for Charity Facebook at https://www.facebook.com/handmadecardsforcharity/. All proceeds will be donated to the Turner Syndrome Foundation. To learn more about the Turner Syndrome Foundation, visit www.TurnerSyndromeFoundation.org.

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