Wednesday, January 9, 2019

February is Turner Syndrome Awareness Month



Why is Awareness Month Important?
February 1 officially marks the start of Turner Syndrome Awareness Month! While it’s important to raise awareness for Turner Syndrome all year long, February is a chance to do a little more!
Everyone wants to raise awareness for a different reason because each Turner Syndrome story is so unique. Caregivers searching for ways to share a diagnosis are probably here for different reasons than a woman looking for adult resources. Or maybe you want to support someone affected by TS in your life. No matter what brought you here, it’s safe to say that we all want to raise awareness and make an impact for the future of Turner Syndrome care.
Awareness Month is so important because it is an opportunity for our community to come together. One person can make a tremendous impact, but together we can bring awareness to Turner Syndrome on a national scale!
Awareness Month 2019: Awareness in Action
This Awareness Month, we’re celebrating the power of one! If one person takes one action, the impact can be incredible! February is a special opportunity to show the world why Turner girls are amazing and why it’s important to recognize the signs of this condition that’s often misdiagnosed. Will you take a stand with us?

By participating in the "It's a Girl Thing" ~ Turner Syndrome Awareness Blog Hop you are helping to spread information and awareness of Turner Syndrome!!  I appreciate each and every one of you who are standing with me to spread awareness!!  Thank you so very much!!

Lori

Friday, January 4, 2019

"It's a Girl Thing" Turner Syndrome Awareness Inaugural Blog Hop



Hello Everyone!!


If you have just heard about Turner Syndrome or the Turner Syndrome Awareness Inaugural Blog Hop going on the first week of February 2019 ~  I would like to welcome you to this blog! 

My daughter, Julie, was born with Turner Syndrome.  Over the years we have found that not many people know about Turner Syndrome and I have made it my mission to make the world aware of this Genetic Condition in the hopes that more research will  be done about Turner Syndrome and the life long effect it has on females!  

Why am I doing a Blog Hop in February??  Because February is Turner Syndrome Awareness Month!!


Please look around this blog!!  


Thanks for stopping by!
Lori



Tuesday, November 20, 2018

Wishing you all a Happy Thankgsiving!!

Hello Designers!!

First I want to tell you how thankful I am that so many of you have joined me in my mission to educate the world about Turner Syndrome!!  I appreciate each and everyone of you and thank you from the bottom of my heart!  I hope you all have a wonderful Thanksgiving with your loved ones!  Julie is home now through Thanksgiving and I am so happy she is here!!

If by chance any of you should have something come up that you can't be in the Turner Syndrome Awareness Blog Hop please contact me and let me know so that I can take your name off the list.

I will be writing up a little something that you can put into your blog post, but I haven't gotten that far yet.  I am hoping to get that done by mid December.

One of the Designers was kind enough to ask about donating her cards to the Cards for Charity cards that I am selling for the Turner Syndrome Foundation.  If anyone would like to donate their card to be sold on the Cards for Charity facebook page all the money from the card sales will be donated to the Turner Syndrome Foundation here in NJ.  It is not required that you send me your card to participate, its only if you want to.  If you have any questions, please e-mail me at:  mulchlady6@gmail.  If you decide that you want to send your card in to be sold for TS then you can mail it to me at:

Lori Kobular
1119 Aster Drive
Toms River, NJ  08753

Thank you all again!!  I can't wait to see what everyone creates for this blog hop!!

Happy Thanksgiving!!
Lori


Sunday, October 14, 2018

My Turner Syndrome Journey BLOG HOP INFO!

Most people have never heard of Turner Syndrome (TS). 
I certainly had not. 




But a few years ago, Blogging Friend and DT buddy, Lori Kobular, began sharing about her loving vigilance in caring for her Turner Syndrome (TS) daughter.
I was deeply moved, not only by the quiet manner in which Lori is always helping others and advocating for them, but also by her family and their devotion to one another.

Hi. My name is Donna. Lori and I have become united in a desire to bring an awareness about TS, and vital information to others, by creating this blog and organizing a blog hop with many of our creatively supportive friends.


Our blog is not clinical - it's meant to bring information in an easy-to-use, easy-to-read format.
The TS Awareness blog hop is intended to educate people about TS and how it affects girls and their families. Turner Syndrome affects one girl in every 2000-2500. For a quick pictorial look, please see the "about" tab at the top of this blog. There are also buttons in the side bar linking to the TS Foundation and other organizations.

To me, it is nothing short of miraculous that anyone can live missing their 2nd girly X chromosome. Truly magical in a stardust sense!




A note to Blog Hop designers:
Please read the "DT Guidelines" tab at the top of the blog.

We cannot thank you enough for your kindness in helping spread the word.

A note to our Visitors: Several generous sponsors have agreed to award prizes to hoppers. Winners will be randomly drawn from (a yet to be determined) number of designers' blogs so be sure to visit each blog to increase your chances of winning
AND LEARNING!

Lori and I would love hearing from you. Please leave a comment about your questions or thoughts. We will do everything possible to get back to you. Lori's email address is



Thank you!