ABOUT TURNER SYNDROME

Turner Syndrome is a genetic disorder where a female is born missing her second X Chromosome, leaving her with life long medical issues. It affects 1 in every 2,000 to 2,500 girls but is more common among pregnancies that do not survive to term (miscarriages and stillbirths). TS is named after Dr. Henry Turner, who discovered the condition in 1938.
















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updated 8-16-2019 de

28 comments:

  1. God Bless you for creating awareness of this disorder. It is such a beautiful yet difficult thing to be a parent; and when your child suffers from a "hard to see" affliction a parent can really feel isolated as well as the child as she grows older. Awareness, sharing and fellowship are such beautiful ways to combat this isolation - all of which are the results blog hops. Thanks for making me aware of TS and having a venue which shares beauty in so many wonderful layers :)

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    1. Thank you Wendy!! So glad that you will be joining us on the blog hop!!

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  2. Wow, what a wonderful line up of images. One would never guess some of the hardships they face. Thanks for sharing your story Lori xoxo

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  3. Thank you Wendy!! So happy you are joining us!!

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  4. Thankyou!! Lori for sharing this educational format into the many face of TS.
    I certainly learned alot about TS I did not know from your easy to read application.

    Your message reinforces to me just how amazing your daughter is, and how she shows us everyday what striving with TS looks like.

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    1. Thank you for visiting, and we are grateful you can now share about Turner Syndrome with other people!

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    2. Thank you for stopping by the Turner Syndrome Awareness Blog! Julie is an amazing women and I am so proud of her!

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  5. Thanks for sharing all this info Lori, I had no idea of the many symptoms.
    Hugs DIANA L.

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    1. Thanks for taking the time to learn about Turner Syndrome!!

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  6. I confess I had not heard of this syndrome before so I learned a lot. Thanks for sharing the information.

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  7. Hi Verna! Thank you for stopping by the blog and learning about Turner Syndrome!

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  8. Wow-that’s great information. I had not heard of this before.

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  9. Wow, so much great information. I've never heard of Turner's syndrome. Thank you for sharing and bringing awareness to this cause. Beautiful girls and women!

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  10. Thank you for creating awareness about TS! Honestly, I'm not aware of this before! So informative and I learned a lot!

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  11. Didn't know anything
    about this. Thanks for
    sharing all the information.
    Carla from Utah

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  12. I am privileged to have worked with a young lady who has TS. She wasn't diagnosed to her late teens & faced no end of problems even when the diagnosis was found. I never realised how many are effected, this needs far more awareness & funding for research. The photo of all those growth hormone injections chills me, she like others are so brave. Thank you for raising awareness to this condition in a fun way. I'm off to see the inspiration everyone has & share this post to my friends.

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  13. Thank you for the information about TS. It is the first time I have heard of it, and I learned so much from seeing these beautiful young ladies and realizing the breadth of their battles with so many issues like hypertension, diabetes, IBS. How brave and beautiful they are!

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  14. Awareness is so very important for those diseases/syndromes that you never or rarely hear about. And I am so glad that you are bringing awareness to the Turner Syndrome. My heart goes out to the parents, the child, and the families that are afflicted by TS. I do not know anyone personally that has TS, but I will keep them all in my prayers.

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  15. Thank you for bringing awareness to Turner Syndrome. I was fascinated to hear it was discovered in 1938 and so many, myself included, have never heard of it! The problems it creates in the female body are tremendous! Also the mental challenges. The word "fragile" comes to mind with more frequent bone breakage, potential kidney and liver problems, hearing and visual problems along with high anxiety.

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  16. It is so shocking to see that one little missing chromosome can cause so much trouble! I've never heard of this syndrome before and have learned a lot coming across this post and blog hop!

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  17. I learned a lot from reading this! I had never even heard of Turner Syndrome before the post here.

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  18. This was a great way to teach us all about Turner Syndrome! All the photos of these very special girls remind us all just what miracles girls who survive Turner Syndrome truly are! I learned this has been around since 1938, yet I've never heard of it before. I'm so glad that you are a part of this today!
    Take Care!
    Michele
    crimsonowl@comcast.net

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  19. Thank you for sharing the information about Turner Syndrome. What a marvellous collection of photos of these special little girls - all smiling and all so beautiful! I came here via a new blogland friend with a link on her blog. Wishing all of you the very best for the awareness programme and for the blog hop.

    Shoshi

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  20. I did not know about Turner Syndrome, and I thank you for the clear presentation of many of its effects on girls and women. As awareness spreads, I hope treatment options will increase as well.

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  21. This is the first time I've heard of this. It's many complications may make it hard or take longer to confirm the diagnosis. I'm floored that diagnosis is generally around 9 years of age and sometimes adulthood. Thanks for this awareness.

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  22. Dear Lori
    This is the first time I heard of TS. I know that it is a genetic disorder and it leads to many sicknesses and affects even communication and gives rise to anxiety among girls and women. Thank you for creating this awareness. I salute all the girls and women who are strong despite facing all these complications. My prayers will be with your daughter as well as all the daughters in the world whop are affected by TS. tc stay blessed always. love and hugs from Sri Lanka

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  23. Thank you for spreading awareness. Our daughter has TS and it impacts every part of her life. She is now 42 years old and lives a full life but must deal with so many health problems every day but you will never meet a sweeterr more caring person.

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